March 15, 2022
Call for Evidence launched for national brain injury strategy
We want everyone affected by neurological conditions to have access to high quality, joined up care and support to meet their needs whoever they are, whenever they need it and wherever they live. We know there are huge variations across the UK and not everyone has access to the same care and support.
The Independent Neurorehabilitation Providers Alliance is a member of The Neurological Alliance and we are supporting promotion of their survey. My Neuro Survey is run every two years and aims to give an accurate picture of people’s experience of neurological care, treatment and support across the country.
This year’s survey includes a version for children and young people – so whatever your age and whatever your neurological condition, you can take part. The 2021 survey is also UK wide and run in partnership with the Neurological Alliances of Scotland and Wales and the Northern Ireland Neurological Charities Alliance (niNCA).
The impact of the COVID-19 pandemic has put additional strain on overstretched services and has made it even harder to access the right treatment and support. It’s more important than ever to reach people with neurological conditions and help make sure their voices are heard.
The more responses we get, the more effective we can be in campaigning alongside The Neurological Alliance for change and transforming health and social care for everyone with a neurological condition.
In 2019, over 10,000 people took part in the survey and the results have been used to improve services in hospitals, develop new specialist centres, and spark debate in Parliament.
To take part visit http://qhweb.co.uk/myneuroNAM?CRA or call the survey partners, Quality Health on 0800 783 1775 (Freephone) to: • hear and complete the survey over the phone in any language • ask for a paper copy to be sent to your address • ask for a large print version • ask for an Easy Read version of the survey 3.
By sharing your experiences, you’ll help to gather the evidence to make the case for change. My Neuro Survey is completely anonymous and secure. The survey takes around 20 minutes to complete. Please take part and make your voice heard. Thank you.